Friday, 15 May 2015

Is it really heroic to lend a hand?

There's a viral video doing the rounds.

The story is:
A disabled woman goes to a restaurant she regularly visits, a member of staff opens the door for her, takes her to a table, as she is a regular the member of staff remembers her regular order, brings it to her and asks if there is anything else. 
This so far is routine, and what could be expected of any staff member in a customer service role.

Her answer is to ask for help eating. So the member of staff does what she asks.

Cool. Nice guy. Like many people I've met, he was willing to help someone out. I've had dozens of experiences where people have helped me when I've met disability related challenges - carrying me up stairs, cutting up meals - even helping relocate dislocated joints. Certainly worth a thank you - but also an every day occurrence of someone being a decent human being.

And then......
" witness the incredible moment Ridge obliged his customer in a simple yet heroic act of kindness. "
No. Just no.

Why?

Think about it.

Think about it properly.

If an able bodied person had asked for something slightly out of the ordinary (perhaps for food to be served in a certain way) and staff had said 'OK' and done it, it would surely be worth a thank you. But no one would call that heroic - they'd call it 'excellent customer service'.

How would you feel if someone saw you receive excellent customer service, and proceeded to share it round the internet depicting the giver as heroic - based on the fact that you looked different?

Am I, as a wheelchair using disabled woman, so terrifying and dangerous that treating me like a fellow human being is heroic? Or are the many things I need help with so hideously inconvenient that anyone who helps is somehow superhuman?

If someone has helped someone else, good for them. Credit where credit is due. There are lots of nice decent people out there, lots of people I am grateful to.. But heroic?

No. Just no.


Thursday, 30 April 2015

The best of customers.

I have the best facebook followers.

I turn to them when I hit a wall in my design work.

Not long ago I was working on a stickman advert to go in a magazine. But the space given is only 67mm by 45mm.

Smaller than a business card.

teeny tiny.

So I managed to come up with this:

I knew it wasn't 'right' yet, but I'd hit a brick wall, So I put it on facebook.

And we made progress...







See? I told you my facebook people are fabulous.

They have helped out with almost every single design - many of which were instigated by customers and facebook followers!

I can't thank you guys enough!

Wednesday, 22 April 2015

Perhaps a little fatigued.

Yesterday I tried to make a cup of tea:


Yep. I may have been a little fatigued.

You wouldn't believe the effort that went into that realisation! :D

And no. It's not like 'tired'. It's a whole HEAP more than tired, as a friend said on facebook:
"This dysautonomia/chronic disease fatigue is absolutely nothing like 'I had a busy day' or 'I am struggling to get enough sleep' fatigue. This is 'the air is too heavy' fatigue. It is 'my brain cells are sweating with effort' fatigue. It is 'divert auxiliary power to life support' fatigue."
When I'm fatigued simply 'living and breathing' is taking up everything I have - anything else (conversing, thinking, following instructions, moving unnecessarily) is so exhausting it makes me feel sick. Or becomes simply impossible.

So if I'm having a fatigued day, please be patient. Resting it out and pacing my activities to ones that I can cope with are key - just getting up and doing stuff when I'm like this isn't helpful and makes getting back to normal take even longer.


This keyring card was inspired by seeing the difference between what I call 'fatigued' and what others understand by it. And seeing that this misunderstanding isn't limited to me, but exists across almost the entire population of people with fatigue-inducing medical conditions or treatments - from Lupus to Chronic Fatigue Syndrome, from autonomic dysfunction to chemotherapy side effects.

Monday, 20 April 2015

Mission X8 Freedom #2

I don't believe it!

Can this really be true?

I am actually getting an Extreme X8!

Yes, the off-road 4x4 wheelchair which I test drove up Whittenham Clumps 2 years ago. Much of the intervening time was spent thinking "...when I have my X8...." so when the financial possibility opened up, I took it. I'll be paying it off for years and years, but I reckon it'll be worth it! (Although I managed to wangle a discount based on the fact that I'd blog about it, and my blog is read by people with mobility problems :D)

On Thursday Richard arrived (from the UK stockist AllTerrainWheelchairs) I had the joy of deciding what features I want - options for powered leg elevation, seat risers and recliners different joystick and arm rest options - all sorts.

My choices were simplified when I discovered that with the removable back option and a portable ramp this chair will fit in the back of my Ford Fusion! (I'll blog a bit about transporting options another day) This still has  a manual recline function - so I can lie down to manage my POTS when I'm half way up a muddy mountain.

I also opted for
  • the powered 'tilt in space' - so if going down a steep bit, I can tilt the seat so it is level with the ground. 
  • the seat riser - so I can be 6 ft tall, talk to peoples faces, and see over walls and fences.
  • removable armrests.
  • Green paint - because it just seemed right. 
It has headlights, tail lights and indicators - I can go exploring in the dark.

I drove the chair through the fairly narrow side gate and round to where I will be building a storage shed for it, and also managed to drive it through my flat (it's built for outside - but it coped. And with a bit more driving skill, my skirting boards won't loose any more paint).  (I'll blog a bit more about storage another day too)

I'll have to wait 4-6 weeks while it is built and shipped from Australia. But it will be worth it.

This afternoon my Mum is coming round and we are planning a holiday in Derbyshire (probably) - to somewhere as rural as possible and with excellent walks/cycle routes.

I still can't believe it is happening!

Thursday, 9 April 2015

Autism Awareness Month?

Apparently April is Austism Awareness Month.

I have mixed feelings about awareness months. Sometimes they can accidentally veer into pity. Or the media gets hold of a sensational story about an extreme or unique case and parades it as typical of whatever condition is being talked about. Meaning that proper understanding actually isn't improved.

Having said that, the more people who understand it, the better.

But I prefer the term used by The Thinking Persons Guide To Autism - 'Autism Acceptance Month' - because acceptance is the vital part.

I don't have autism (although I know lots of people on the autistic spectrum) so I'm not going to write about what it means to be autistic, because there are many others who do a much better job than I can, such as:
The Thinking Persons Guide To Autism
and
Aukids

But I do know is that people with autism are all very different from each other. Different personalities, different interests - but with some shared traits. Basically like the rest of the human race: We are all different, but we also share some similarities. All of us, in our own ways, are differently normal.

And just as I want people to respect my personal boundaries (no-one leans on my wheelchair, OK?!) so do people with autism. And for this simple reason I've tried to learn a bit about where these boundaries might be. They aren't the same or everyone, but if I know some common ones then at least if I meet someone with that boundary I can do a better job of accepting and respecting it.

The foundation of my keyring cards is 'ways to clearly and positively show my personal limit in a situation that won't cause me more stress', so I suppose it isn't surprising that it wasn't long before people were asking for designs relating to common autistic traits.

So here's to acceptance.

To Autism Acceptance Month.

And to celebrate I've dropped the prices of the individual keyring cards listed under 'Autistic Spectrum' in my shop for the duration of April.

 


If you aren't on the autistic spectrum, I'd strongly suggest taking a look at the cards - because reading through them you may find some of the things that people with autism really need you to know in a situation, but which we as people are often not very good at hearing!

Monday, 30 March 2015

An exhibition learning curve

Thursday the 19th March was my first indoor disability exhibition as a stand holder!

A stand at the Kidz In The Middle exhibition in Coventry.

It was exhilarating and exhausting - it's taken me until now to get back to my usual level of functioning, but it was worth it.

It took a lot of planning - I spent most of my time for the 4 weeks up to it deciding on freebies, designing posters and leaflets, and coming up with ways to display my products for sale without causing total information overload.

After much deliberation I decided to go for having 1 of most things on display except the keyring cards and car stickers, which I featured in a brochure instead, so people could browse through and we could get the ones they wanted from storage out of sight.

The plan was to have 4 of us, so we could each have a couple of long breaks, as well as being able to go for a wander and meet other stand holders.

Deciding whether to opt for lighting or not was a huge decision: would it make much difference? Would it make me overheat and crumple? Was it worth the extra cost? - opting in the end for a single strip light.

What I learnt, as a stand holder targeting a combination of brand-awareness-raising and sales:


  1.   Less is more: having sample products out and stock hidden worked.
  2. Two people is not enough for a busy stand. (2 of my assistants had to drop out due to unpreventable stuff - it was just bad luck it happened to be half my team!)
  3. If you want to get round to see other stalls, bring more staff! I only saw my neighbours and a few en route to the loo!
  4. Bright, interesting, relevant, new products draw a crowd (between 11:00 and 15:00 we probably had a total of 5 minutes without people at our stand!)
  5. I don't need as much stock next time - some people will buy, but many will just browse and get information.
  6. Always have additional light. It makes a huge difference! (And if you overheat easily, get a striplight/fluorescent tube light NOT spot lights)
  7. Have packs ready made to hand out. When people are standing 2 -3 deep at your stand and waiting to get to the table, being able to pass a pack through the crowd to them means you reach them even if they decide to move on before the crowd clears.
  8. Iron your table cloths. (Or get someone else to. I forgot and regretted it)
  9. By 3pm everyone has a glazed look. Don't try to engage exhausted customers in conversation- instead acknowledge it's been a tiring day and hand them some info to be looked at later.
  10. If you are selling, make your prices easy. Give discounts so that all values are easy to add up! (no items with pesky 99p in them, and have a calculator as back-up)
  11. Keep a 'lie on the floor' space behind the stand. This proved to be an invaluable pacing tool for me as lying down is an important way I manage my POTS. 
  12. Set everything up the day before, so on the actual morning you arrive fresh and full of energy, ready for your customers - trust me, you'll need it!
  13. Check out where the toilets are the day before (- and the quickest route to them)
  14. Enjoy it! - people like speaking to people who are enjoying what they are doing. 
Oh, and there were no wheelchair access issues! - which is high praise indeed :D but make sure you plan your own stand to let you get around it as you need to.

As a small business just testing the water, it was reassuring to see that the most popular items were ones I love too:
The 'Today is' wristband set, and the 'Sensory Overload' keyring card. (followed closely by the pink 'differently normal' lanyards!)

    

All in all, it was a very successful day.

It was also lovely to get to meet some of the KIM team  - well done guys, it was a great event, and I look forward to doing more.

My personal highlight?
Winning the 'stand selfie' competition 


Yes, I am a responsible adult. That is why I draw stickmen for a living.

Friday, 13 March 2015

More exhibition planning

'Kidz in the Middle' is approaching far too fast!

And so is a cold. Which I am hoping speeds up so it passes before the 19th.

I have leaflets printed.
I have freebies sorted (sticker sheets, carrier bags and pens)
I have staff....well, almost. I have essential level staff, but am working on 'make this sensible rather than survivable' level staff. (These exhibition stands really aren't designed to be manned by people with fatigue-inducing disabilities!)
Today I sent my stand posters off for printing.
And (thanks to a friend for the idea) I've sent a brochure of keyring cards and stickers off for printing too - so people can quickly and easily browse through the entire ranges without having a super-cluttered stall.
And I've planned where everything might go (subject to change of course.) (I rather like maps and floor plans. Can you tell?)

I've decided to take almost my full range of stock, but only put samples out and keep the stock hidden so my table doesn't turn into a huge overwhelming mess. Instead a nice, clear table space with interesting things on, and helpful staff will fetch the products for the customers.....at least that is the theory.

How it all works out in practice remains to be seen.

And having sounded all organised, I have yet to sort stock for taking, print price tags and price lists, pack all the exhibition randoms that are always needed. And scissors. And do all the other stuff I haven't thought of yet.

I am really looking forward to seeing how it all turns out!

But slightly less looking forward to seeing what this cold decides to do.