Wednesday, 20 November 2013

Unexpectedly Perfect Storage

Over the past 6 months my product range has expanded hugely - new books, new stickers, new communication cards. As a result my office became somewhat....untidy.

It took me several weeks of research to find the right storage unit, plus several excel spreadsheets of price comparisons and space calculations. But I found the best one. The right size unit, with whatever tray sizes I needed and the colours I wanted. Customer service was excellent with quick responses to my queries.

I'd chosen 'Mount Industries'.

I was excited about delivery of the solution to my office woes, but when I got the invoice (and therefore the full company details - they are a part of Enham Trust) I realised that actually, my storage was being made and delivered by people like me. People with disabilities.

Perhaps like me they had tried a conventional work setting and found it didn't work for them. Perhaps they hadn't been able to find conventional work. Either way, I found my stickmen, they found Mount Industries. It is hard to say exactly why I love this so much. But I do. Perhaps it is something akin to searching for a product, buying the perfect one - and then discovering that it was made by a good friend.

And now it has arrived, sturdy and well made - exactly as ordered - and been fully stocked with stickmen communicating joyously about disability. Every time I see it I am proud. Proud of the people I have never met, but with whom I feel connected. Proud to be a customer of Mount Industries.

And my heart does an extra little dance of joy because I chose Mount Industries because it was the best value, the best customer service, and a professional approach with flexible choice.

I made no special allowances. I searched for the best, I ordered the best, and I got the best.

And it came from people with disabilities.


Saturday, 16 November 2013

12 tips for dealing with able-bodied people

Having read a few blog posts recently about how to interact with people with disabilities/not be able-ist which I didn't entirely agree with, I thought this one (written to me, from my perspective, based on my experience and observation, with a bit of silliness. May not be applicable/relevant to all.) was overdue:

1. You are an ambassador for people with disabilities.
Whether you like it or not. You might be one of very few people with visible difference that an individual meets, so how you react will colour there perceptions of disability and future interactions. Your reaction matters to your future, so be nice.

2. Offers of assistance can be refused politely.
Even when it is the 9th offer and all you've done wheel easily round your favourite shop. Sometimes you will need help, sometimes others will need help so you can't afford to make people scared to ask. Assertive is fine, but aggressive is not. It helps to start by thanking them for the offer...then give a firm, respectful refusal.

3. Kids are curious
They are learning about the world, and when they look at you they are usually trying to learn. Have a simple answer to the "why are you in a wheelchair" ready. Like "I can't walk very well."

Usually the kids are not judging, just learning, so even though it can get tedious, try to react nicely because that will be one less future adult who panics at the sight of wheels.

4. Not everyone is comfortable around wheels.
Political correctness may have taught them not to say lots of things, but forgotten to tell them "it's a person, show politeness and consideration and all will be OK. If it turns out they are truly nasty, that is nothing to do with disability and everything to do with them being human." This often shows itself in stupid comments, avoidance, patronising comments, and/or addressing questions/comments to an able bodied companion rather than you. Do not take it personally or take offence - this makes them even scared-er, awkward-er and worse-er next time. If you think you can say something that will help them relax, do so.

5. Try not to exclude walkies from your conversations.
When out with a mix of wheelies and walkies, conversation and interaction is easier with people on your level - in this case, other wheelies. Although this is due to practicality rather than a disdain of walkies and is perfectly innocent and accidental, try to remember to direct some comments up to the walkies and include them otherwise they feel left out.

6. Do not be offended by 'I wish I had a chair' comments
It might fall under tip number 4. Or it might be due to achey legs, or due to a disability you hadn't noticed. Remember that time when you were disabled but pre-wheels, and you said to a wheelie about wishing you had a chair, meaning it literally and that you were seriously considering getting one, and they bit your head off? DON'T MAKE THE SAME MISTAKE!
Or it might be because they have seen how awesome your chair is and are feeling a teensy bit put out that you just nipped past them with such speed, grace and agility. In which case, grin and admit that there and then, you had the advantage.

7. Never yell at someone for parking in a 'blue badge' space.
There are thousands of invisible disabilities which give a valid reason to use those spaces. Shouting abuse at someone who has parked legitimately can cause lasting damage. It is not worth the risk. A polite, friendly 'Have you put your blue badge out?' is inoffensive for legitimate users and can be far more effective long term for illegal users than a stroppy/aggressive reaction - cos aggression makes people become defensive so they don't actually think about their action, just about that stroppy disabled person who was totally unreasonable.
Unless that person is a friend/relative who has nicked your badge. Then yell all you like.

8. Avoid the temptation to use the word 'crip' at every opportunity.
You might be comfortable with it, in some contexts prefer it to 'disabled', and quite like the fact that it is 'un-PC' but some people find it genuinely offensive. No hard and fast rules here - many people are OK with it, just try and be aware of reactions and don't keep using it if it seems to cause offence.

9. You do not hold exclusive rights to the lift/elevator.
Able bodied people have many reasons to use them too. Like 'because they decided to.' Just wait your turn and try not to run anyone over.

10. Don't bite people who pat you on the head.
Head-patting might be infuriating, patronising and insulting, but biting gets you arrested. Don't do it.

11. People are more likely to walk into you.
They just are. It's nothing personal, it's because when in a wheelchair you are usually below their natural line of sight and not everyone is good at noticing things in their peripheral vision.

12. Able bodied people are people first and foremost.
So if they behave in an unacceptable way remember that first and foremost they are a person, just like you. They make mistakes too. Treat them with the respect with which you would like to be treated.

Monday, 4 November 2013

Word finding issues? You are not alone.

Yesterday I was giggling with my little sister about silly stuff we have said, where the wrong words pop out, or we read something and somehow read a completely different word.....I mean just how does 'customised' get read as 'Cigarettes'? (hers) or 'Husband and car' as 'handstands and custard'? (mine)

But I still find my brothers careful, focused, intensely thought out error one of the funniest. Not least because he was concentrating so hard on using the right word. (at the Birmingham Para-Athletics Grand Prix 2013):

Friday, 1 November 2013

They got it right

For the HMSA's family event in Wakefield I stayed at the Waterton Park Hotel. It is lovely - the grounds are stunning and the staff treat you like nothing is too much effort. Unfortunately there were a few wheelchair access issues, and a trip to A and E (due to a friend's anaphylaxis) but this still didn't spoil the weekend.


Because so many people got it right. Reception staff, catering staff, bar staff, leisure/gym staff, hotel management and more.

For example: between building 1 (main reception and our room) on the mainland and building 2 (bar, gym and restaurant) on the island in the lake there is a beautiful, 'listed building' cobbled footbridge, too narrow for a car. With ancient, pitted, wheel-swallowing cobbles. And it is stupidly steep. Beautiful, but the only way over for us was to ask for help....and yet....I didn't mind. Why?
Poor assistance is patronising and based on assumption.
Good assistance involves communication and respect.
But the hotel and gym staff went one better and simply made it clear they were there to serve - it made no difference whether it was 'help me across the bridge' or 'a glass of orange juice please.' I never heard a single complaint about our frequent trips over that bridge - no hint that we had inconvenienced anyone. They treated our requests as routine and totally unexceptional. Actually, it even felt like they were pleased to have been asked. Through their attitude the staff made the hotel accessible.

Because for the first time I can recall, asking for 'special' access arrangements/assistance in a public building was no more embarrassing or belittling than ordering food in a restaurant.

They got it right.

Having said that, I would still like to get across that bridge unaided....I may have suggested they get an X8 extreme. Or two.

If they get an X8 I will DEFINITELY be back.

Repeatedly. For the perfect Hannah 'relax and recuperate' holiday.

(If you have any disability/access requirements and are thinking of staying at Waterton Park or using the leisure facilities there, call the hotel to discuss it - when I booked they told me about the bridge, and that the gym is down a stairs - and sent photos to help me work out whether things would work for me.)