A day to celebrate the freedom wheels have brought:
To cross a room without a thought
To carry a bag without a fall
To converse without having to hug the wall
To spend a day with friends
And keep up until the end.
Obviously I am also totally proud of the fact that I drew the IWD logo:
Getting my wheels 5 years ago may have been a big decision, but also the most liberating. I am so much less disabled when I'm in them. As I have EDS I dislocate all my joints a lot - and trust me, walking on knees that pop out randomly at almost every step is highly inconvenient. I also have PoTS meaning the blood flow to my brain slows down when I stand up (or digest, or talk, or sit) making me get stroke like symptoms and end up semi-concious if I stand for more than a few seconds - although I am improving thanks to a new treatment :D
So I CAN walk - didn't that mean I would be 'faking it' or 'exagerating it' if I used wheels? Aren't they only for 'proper' disabled people? - No. They are for those who would benefit from using them. People like me.
I was at the point where I could hardly do anything at all - and I certainly couldn't do anything in a relaxed and easy way other than lie down. EVERYTHING was a challenge, and at 23yrs old I thought falling over daily was 'normal'. Now I have my wheels I can go shopping, socialise, dance, sail, even do some basic chores on a good day. All things that without my wheels would be simply: Impossible.
I walk where I can and I wheel where I can't. My wheels quite literally gave me back my life. My independance. My sparkle.
So wheels, I thank you for all the time we've spent together, and bring on the future!