tag:blogger.com,1999:blog-8572102937612408267.post7694753889337680571..comments2024-03-08T03:58:13.625+00:00Comments on Stickman Communications: Pain: Common MisunderstandingsHannah Ensorhttp://www.blogger.com/profile/12228122568368871809noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8572102937612408267.post-47861450026802835692014-05-23T13:41:04.187+01:002014-05-23T13:41:04.187+01:00I know this barrier for discussing pain well. In ...I know this barrier for discussing pain well. In my case I say, do you know what it feels like to dislocate your kneecap? If they say no, I then try down a step, have you sprained your ankle really badly? If yes, and that's their 10 I say right my pain level is about 14!<br /><br />Pain cannot be quantified unless you are using an equal scale. The day that the medical profession can quantitatively measure pain will be the greatest advance in medicine ever!Anthony Turtlehttps://www.blogger.com/profile/07993116878999713674noreply@blogger.comtag:blogger.com,1999:blog-8572102937612408267.post-42085479521952095772014-05-13T09:19:33.247+01:002014-05-13T09:19:33.247+01:00After being diagnosed with a chronic pain disorder...After being diagnosed with a chronic pain disorder in my right leg I started the search for some rehabilitation in order to help me cope with the pain and get some tips and tricks to make life easier. Part of my search was to better my driving of my wheelchair. <br />The first one did offer an interesting rehabilitation plan but it was totally based on lower back pain and not on upper leg. So I was not admitted.<br />The second one started promising. A good plan, 6 weeks intens training, the first three weeks even staying overnight in the centre.<br />Before I was admitted I had to get thru the admission procedure. On the day I had to be there early and my wife was to accompany me because she would be questioned as well. <br />We were questioned together but also alone. I was examined by a fysiotherapist as the mainstay of the diagnoses was already done by the hospital that referred me. And by an occupational therapist.<br />All in all it took the better part of a day. <br />After a few weeks I got the results. Admission was denied because I didn’t suffer but we were offered consultation with a sexuoligist because that was seen as a problem. Oke it is not optimal but no problem to us.<br />I was livid. Didn’t suffer, even with strong medication my pain is appr. a steady six with peaks to 8 or 9 out of ten. <br />My wife was livid at me and at the people at the centre because I also have Asperger. She was angry at me because I hadn’t been clear enough about my level of pain. And the shrink was clearly not able to see thru the Asperger syndrome.<br />At first we cut of all communications but at a laterstage we requested a meeting with the head of the admission commite. <br />Still angry we started the conversation but it soon became clear that we both used a different kind of suffering. What they meant was not the physical suffering from the pain but the mental suffering from being in a wheelchair. I didn’t care being in a wheelchair. Oke it is harder getting around but it in the end it is a tool to me. A tool for getting around while walking was limited to some 50 meters. <br />After searching for some 4 years I finally got the rehabilitation that I was searching for. It was offered to me out of the blue by one of my physiotherapists, because she saw my struggling for progression and not getting there. I’m stil in the wheelchair but I am now able to walk at least 300 to 1000 meters with a cain (depending on whether it’s a bad or a good day). More then enough for some small errands. <br />Oke it is a long story but here too there was confusion about the definition of words. <br />. <br />Roleendhttps://www.blogger.com/profile/10045621118956249238noreply@blogger.com