I was trying to explain how managing my HMS/EDS affects how I sit and how I move.
Like if I am standing, it is with the kind of body awareness and concentration found in a gymnast on the beam. And sitting; to minimise my symptoms I have to sit with good posture. Not like I have a poker in my spine - in some imagined concrete casting of 'perfect posture', but like alive and ready to move with all my muscles switched on. This is how I have to be to keep my joints aligned and limit blood pooling in my abdomen (otherwise my blood avoids my brain, which is highly inconvenient.)
I concentrate on body position all the time (my proprioception isn't accurate enough to work out body position automatically)- only of course I don't remember to all the time. So I forget for a bit - reverting to the spuds position, then symptoms start to build and I remember and switch back to good posture again. It's taken years -starting from sitting well for a few seconds - to build up to where I am now, and will probably take work for the rest of my life. But it's worth it.
Anyway. I was trying to explain all this to a dancer, who said simply "I'd call that 'poise'".
And there you have it.
"to rest in equilibrium; be balanced."
"suspense or wavering, as between rest and motion or two phases of motion"
(Definitions from dictionary.reference.com)
Balanced - but ready for movement.
That is what I do. I am learning to live with poise.